ADHD, AuDHD, and self-diagnosis: Is it valid? | Sorry, I Missed This

Is ADHD self-diagnosis valid? According to clinical psychologist Dr. Elizabeth Kilmer, that’s the wrong question entirely. When access to diagnosis is limited by cost, insurance, stigma, and identity — and when the people who self-diagnose show higher rates of negative self-image and internalized stigma — the real conversation isn’t about validity. It’s about how we make sure people have access to good information.
Cate and Dr. Kilmer dig into what really happens when people research their own neurodivergence. They discuss research analyzing 452,000 Reddit posts that found self-diagnosed individuals seek more social validation. But they benefit less from it.
They cover what actually happens in a clinical ADHD assessment and how comorbidities like anxiety, depression, and OCD complicate the picture. And they discuss why the question “Is self-diagnosis valid?” misses the point when getting a formal diagnosis is a privilege that many can’t access.
For more on this topic
Read: Missed, misread, misdiagnosed: Current state of women with ADHD
Listen: Is ADHD online diagnosis legit?
For a transcript and more resources, visit Sorry, I Missed This on Understood.org. You can also email us at [email protected].
Getting your child the support they need at school shouldn’t feel like a fight. But for millions of families, it does. In Zero Reject, an investigative podcast from Understood.org, award-winning journalist Anya Kamenetz looks at how changing federal policies are reshaping special education — and what’s at stake for families trying to access the support their children are legally entitled to. Start listening now.
Understood is a nonprofit where millions of people who are navigating neurodivergence find clear guidance, practical tools, and people who get it. To help us continue this work, donate at u.org/give
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.